Monday, May 05, 2003

OK, we're back from seeing Celes in Tulsa. While there, we learned a few things, like how to care for her gastrostomy tube and how to suction her trach tube to get mucuos out. I also changed her diaper for the first time, and we also took her temperature a couple of times. Nothing seemed really all that complicated, so I hope when we're on our own, we get through things easily.

However, today, when Kim called about Celes, they said that her heart wasn't doing something right, so they were going to do another scan on that. I'm not sure, but that may be the cause of her high blood pressure. I hope it's something a pill can fix, and not another surgery. I don't like seeing her like that. Otherwise, she's doing OK (high blood pressure, though). If she's come this far, there's no need to turn back now.

As for my diet, I've had to break it a couple of times. The reason is because I'm tired of eating the same things every day (eggs, salad, bacon, sausage). But I've been eating less than 10 carbohydrates a day, so a day or two of high carbohydrate intake shoudn't affect me too badly. I've just been completely out of energy on the diet and always wanting to sleep (which is normal, it lasts a few days, even up to a week or two). This is just your body transitioning from primarily burning glucose to primarily burning fat. In case you don't know, carbohydrates are what get metabolized into glucose.

The dance that mom did for the fund raiser wasn't a huge success, but it worked out with at least a profit. She says she thinks it made $150, but she's not sure yet because she hasn't counted the money. Mom has been working herself ragged the past few weeks and I feel so indebted to her. Maybe some other day I can do something special for her when I'm in a more stable condition. I'm going to help her tomorrow or the next day or whatever with the house. She wants a deep clean, and that's what she'll get. Last time, Kim and I cleaned the house and did the laundry, so we'll just do a repeat with a little more dusting and whatnot. If only we could get Michael to help more. He reminds me a lot of myself how I was when I was his age about how I never cleaned and relied completely on Mom for everything. But then when I moved out, I got a crash course in practically everything. I didn't even know how to do laundry or cook in a skillet, how bad is that for you? Not to mention, if he could help us out and get a routine, I bet it would help Mom's health condition considerably since a lot of her symptoms are probably related to stress and anxiety. I still think she takes too many pills for her own good, though, but who am I to say.

Also, Kim permed her hair. I never thought you could improve perfection, but I guess I proved myself wrong. The perm looks really nice and gives her a new look. She's trying her hardest to look better for me, even though I think she looks perfect already. A little extra weight isn't a problem that can't be fixed, and that's what she wants to do for both herself and our future baby. We've both agreed that if we have another baby, it'll be after she is at or near her recommended body weight. You just can't take too many precautions when you have had something like this happen.

Oh yeah! I also got my contacts. For only $99, I get 2 pair, which is enough to last 1 year. I feel so much better now that I don't have those goofy looking glasses on my face. I'm supposed to go back in for another checkup next Thursday at 9:30 AM, but I don't know if I'll be able to make it unless the hospital can put us back in for some more training. I will go back for the checkup, because I'm a little worried. The pressure in my eyes was 22, where 10 - 20 are acceptable pressures. This is a risk for glaucoma, and I certainly don't want that (or even really know what it means). I've just been told it can cause blindness and pain, which are two things I least desire.

Well, I guess that's all for today. Happy reading!

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